Thank you Nick for the beautiful poetry and for sharing your journey. ❤️ I don't suffer from fibro (although I have close family members who do), but this one resonated hard with me entirely based on ADHD. In many ways I consider it a superpower, but hoo boy, between the task paralysis and the time blindness, it sure has its own brand of brain fog.
That fog! I’m not sure why it happens, but it happens so frequently that sometimes I think it is the most incapacitating thing about fibromyalgia. The losing the train of thought, or searching for the word that you absolutely know but it’s misfiled somewhere. The loss, oh the loss of your brain! It’s there somewhere, but I can’t remember where.
Yup! And when it has you going back and forth between rooms because you keep forgetting what you’d intended. Then you remember and go back just to forget the mission again.
I have tried lots of med for fibro and the one that helps me best so far is Cymbalta, I was able to get my focus back again (of course, just not when I have flares then its bad as usual) but on my good days the fog is gone 😊
Each and all of us who have fibromyalgia are usually also afflicted with other autoimmune disorders like arthritis that add to the pain-caused despair that overtakes our sanity if we let it.
Yes, Nick, it does. I’ve carried it for more than 40 years but was finally diagnosed in 2013. However, I was diagnosed with arthritis of my spine when I was 20. It all got worse but I still function without meds except those for my heart that was damaged by the Covid injections.
The depression is worse.
All we can do is persevere. Like President Calvin Coolidge said. “Perseverance and determination alone are omnipotent.”
Take care of yourself. Your poetry and podcast make a difference in our world. 🥰
Oh, just everything you wrote resonating with & within me, albeit due to different underlying causes.
I truly appreciate your poetry & your vulnerability in sharing what each one means to you, Nick:
I suspect you might find “Practical Poetry” from the inimitable @practicalblasphemy to be similarly inspiring, though Amelia only shares the stories of her incredible catalogue of posted poems in response to comments.
Take care, manage your spoons so that you can keep being an inspiration & a source of information to me & many others, and be well 🙏
I’ve raised 2 boys with ADHD and 1 had that and Bipolar to go with it. Very interesting upbringing, both great adults now. I have Fibromyalgia from the Gulf War and am on disability thru the military. I retired 3 yrs ago to take care of my mother with dementia.
As a fellow fibro, chronic pain, CKD, Crohn’s and compression fracture sufferer, the best you can do is take time for you and not engage with those who want to bring you down. There’s no sense in wasting another minute with anyone but yourself, your art and your support system. The nature of our society has turned so ugly (and I know I don’t have to tell you that). Your power is in your poetry. Your gift is connection. I appreciate it greatly but use it wisely. There will always be those who want to nitpick you in a way they wouldn’t dare allow others to do the same to them. Ignore them. Some will gain some self awareness; others, never. But it’s not our jobs to hold them accountable for their own misplaced anger and aggression. It’s our job to walk away and keep living life through our art and our peace. Much love and support. I’m here.
Beautifully written, I am just have a surprise, ahead for you to, and family , okay. It’s a one 1️⃣ of those. prizes, your family gets in a cracker. Jack boxes. Take care today, I am off to a dental appointment.
Nick, sometimes I feel we are onto the same journey.!.. I hear ya, I empathize wit all.❤️🩹 We can do this.
❤️
It sucks to be on this same wavelength 🤣 and I’m so glad I have your friendship along the painful journey 🫶🏼💙🤘🏼
Thank you Nick for the beautiful poetry and for sharing your journey. ❤️ I don't suffer from fibro (although I have close family members who do), but this one resonated hard with me entirely based on ADHD. In many ways I consider it a superpower, but hoo boy, between the task paralysis and the time blindness, it sure has its own brand of brain fog.
Water trickling, making
A path through the
fog.
Onward.
That fog! I’m not sure why it happens, but it happens so frequently that sometimes I think it is the most incapacitating thing about fibromyalgia. The losing the train of thought, or searching for the word that you absolutely know but it’s misfiled somewhere. The loss, oh the loss of your brain! It’s there somewhere, but I can’t remember where.
It’s the fricken worst. I hate fogging mid thought…a lot…and then poof gone forever.
Yup! And when it has you going back and forth between rooms because you keep forgetting what you’d intended. Then you remember and go back just to forget the mission again.
I have tried lots of med for fibro and the one that helps me best so far is Cymbalta, I was able to get my focus back again (of course, just not when I have flares then its bad as usual) but on my good days the fog is gone 😊
Yes, I also have ADHD.
Each and all of us who have fibromyalgia are usually also afflicted with other autoimmune disorders like arthritis that add to the pain-caused despair that overtakes our sanity if we let it.
It really sucks doesn’t it, Soni?
Yes, Nick, it does. I’ve carried it for more than 40 years but was finally diagnosed in 2013. However, I was diagnosed with arthritis of my spine when I was 20. It all got worse but I still function without meds except those for my heart that was damaged by the Covid injections.
The depression is worse.
All we can do is persevere. Like President Calvin Coolidge said. “Perseverance and determination alone are omnipotent.”
Take care of yourself. Your poetry and podcast make a difference in our world. 🥰
What’s that buzz?
Oh, just everything you wrote resonating with & within me, albeit due to different underlying causes.
I truly appreciate your poetry & your vulnerability in sharing what each one means to you, Nick:
I suspect you might find “Practical Poetry” from the inimitable @practicalblasphemy to be similarly inspiring, though Amelia only shares the stories of her incredible catalogue of posted poems in response to comments.
Take care, manage your spoons so that you can keep being an inspiration & a source of information to me & many others, and be well 🙏
DC
I’ve raised 2 boys with ADHD and 1 had that and Bipolar to go with it. Very interesting upbringing, both great adults now. I have Fibromyalgia from the Gulf War and am on disability thru the military. I retired 3 yrs ago to take care of my mother with dementia.
It does suck.... we can do this. Just not today. 😉🤣🤣
As a fellow fibro, chronic pain, CKD, Crohn’s and compression fracture sufferer, the best you can do is take time for you and not engage with those who want to bring you down. There’s no sense in wasting another minute with anyone but yourself, your art and your support system. The nature of our society has turned so ugly (and I know I don’t have to tell you that). Your power is in your poetry. Your gift is connection. I appreciate it greatly but use it wisely. There will always be those who want to nitpick you in a way they wouldn’t dare allow others to do the same to them. Ignore them. Some will gain some self awareness; others, never. But it’s not our jobs to hold them accountable for their own misplaced anger and aggression. It’s our job to walk away and keep living life through our art and our peace. Much love and support. I’m here.
Beautifully written, I am just have a surprise, ahead for you to, and family , okay. It’s a one 1️⃣ of those. prizes, your family gets in a cracker. Jack boxes. Take care today, I am off to a dental appointment.